For those of you who don’t know, I was diagnosed with thyroid cancer when I was 19. The wonderful thing about it was that by the time I found out I had it, they’d already removed it. I think that’s the best way to find out you have cancer. I was getting my thyroid removed for something else, and the pathology report showed papillary carcinoma (def: small, early stage cancer way inside my thyroid). Since they didn’t know that it was there until after they removed my thyroid, I guess they hadn’t taken all of the precautions they would have if they’d known it was cancerous from the start. So long story short, I had to have some other testing and treatment done to make sure it was all gone.
Fast forward 8 years and I have not really followed up much since. Standard follow up is a total body scan 2 years after and every 5 years thereafter. They basically want to make sure there are no thyroid cells left anywhere in your body. If there are any left, they assume they’re cancerous and want to get rid of them. Sounds like a pretty good plan to me.
I saw one endocrinologist a few years ago who basically said it wasn’t something to be concerned about and I could get away with some periodic blood tests to detect thyroid function and avoid the process (and it is a process) of Radioiodine Total Body Scanning. Well, that just didn’t make me sleep very well at night, and this past Christmas I promised my mom I would see a new doctor and get a second opinion (and a scan).
So here I am (better late than never) finally getting this taken care of and it turns out it truly is a cumbersome process. I remember something about avoiding iodine before you take radioactive iodine but I don’t remember it being a nuisance. The premise for the low-iodine diet is as follows. The scan detects thyroid cells only because of a diagnostic dose of radioactive iodine (I-I31) you drink two days prior. Thyroid tissue relies on iodine to produce hormones. If you deprive your body of iodine long enough, you deplete your iodine stores, and your thyroid is “hungry” for iodine. When you drink the radioactive iodine (or “glow in the dark” iodine, as I like to think of it) after a period of deprivation, your thyroid will absorb more, and the scan will more accurately detect any cell function. This is a no joke test…you have to come in 5 mornings that week to get all sorts of shots to prepare your body for the test, so if you’re going to do it, you’ve gotta go all out and do it right.
So I finally scheduled mine and last week I got a 5 page packet in the mail with a list of all the things I could and couldn’t eat. Guess what? Iodine is in EVERYTHING! I think this is way worse than the Daniel Fast. Here’s the (very) short list:
- No iodized salt or sea salt (duh). Plain salt is fine (the catch: any label that says salt is an ingredient doesn’t specify which kind of salt, so you have to avoid anything you’re not sure about).
- No dairy
- No eggs
- No seafood
- None of the following additives: carrageen, agar-agar, algin, alginates(whaaaa???)
- No cured or corned foods (including lunch meat)
- No bread products with iodate dough conditioners (and how am I supposed to know which is which???)
- No food, vitamins or medication with red food dye
- No chocolate (it contains dairy…figures)
- No molasses (no idea why that is)
- No soy products
Is that not the most absurd list of all time? Consider that I eat 2 meals a day out of a lunchbox sized cooler in my car. On any given morning it contains yogurt (dairy - can’t eat), grape nuts (contains salt, can’t eat), hummus (contains salt, can’t eat), cheese (dairy, can’t eat), crackers (bread and salt, double whammy), and carrot sticks (yay! one permissable snack). I also eat lunch with doctor’s offices most days. This would present a significant challenge. But then I found out that my training is finally scheduled and overlaps with the dates of my low iodine diet. I’ve heard training is notorious for the amount of food served…3 full meals a day plus 2 snacks ranging from ice cream sundaes to nacho bars. So now I will be “that girl” at training who sits in the corner and eats her “special” food…carrot sticks, grilled chicken with no broth injected and no salt, and matzo crackers.
All jokes aside, it is a small price to pay for the comfort of knowing you have a clean bill of health. But if you ask me, there is nothing healthier than keeping a good sense of humor!